The Parkinson's disease e-diary: Developing a clinical and research tool for the digital age

Joaquin A. Vizcarra; Álvaro Sánchez-Ferro; Walter Maetzler; Luca Marsili; Lucia Zavala; Anthony E. Lang; Pablo Martinez-Martin; Tiago A. Mestre; Ralf Reilmann; Jeffrey M. Hausdorff; E. Ray Dorsey; Serene S. Paul; Judith W. Dexheimer; Benjamin D. Wissel; Rebecca L.M. Fuller; Paolo Bonato; Ai Huey Tan; Bastiaan R. Bloem; Catherine Kopil; Margaret Daeschler; Lauren Bataille; Galit Kleiner; Jesse M. Cedarbaum; Jochen Klucken; Aristide Merola; Christopher G. Goetz; Glenn T. Stebbins; Alberto J. Espay; on behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee

doi:10.1002/mds.27673

The Parkinson's disease e-diary: Developing a clinical and research tool for the digital age

Joaquin A. Vizcarra
, Álvaro Sánchez-Ferro
, Walter Maetzler
, Luca Marsili
, Lucia Zavala
, Anthony E. Lang
, Pablo Martinez-Martin
, Tiago A. Mestre
, Ralf Reilmann
, Jeffrey M. Hausdorff
, E. Ray Dorsey
, Serene S. Paul
, Judith W. Dexheimer
, Benjamin D. Wissel
, Rebecca L.M. Fuller
, Paolo Bonato
, Ai Huey Tan
, Bastiaan R. Bloem
, Catherine Kopil
, Margaret Daeschler

Lauren Bataille, Galit Kleiner, Jesse M. Cedarbaum, Jochen Klucken, Aristide Merola, Christopher G. Goetz, Glenn T. Stebbins, Alberto J. Espay^*, on behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee

^*Corresponding author for this work

Research output: Contribution to journal › Comment/debate

49 Citations (Scopus)

Original language	English
Pages (from-to)	676-681
Number of pages	6
Journal	Movement Disorders
Volume	34
Issue number	5
DOIs	https://doi.org/10.1002/mds.27673
Publication status	Published - May 2019
Externally published	Yes

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Vizcarra, J. A., Sánchez-Ferro, Á., Maetzler, W., Marsili, L., Zavala, L., Lang, A. E., Martinez-Martin, P., Mestre, T. A., Reilmann, R., Hausdorff, J. M., Dorsey, E. R., Paul, S. S., Dexheimer, J. W., Wissel, B. D., Fuller, R. L. M., Bonato, P., Tan, A. H., Bloem, B. R., Kopil, C., ... on behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee (2019). The Parkinson's disease e-diary: Developing a clinical and research tool for the digital age. Movement Disorders, 34(5), 676-681. https://doi.org/10.1002/mds.27673

@article{e5301ff1f5734de5aba7662ad8dcc708,

title = "The Parkinson's disease e-diary: Developing a clinical and research tool for the digital age",

author = "Vizcarra, \{Joaquin A.\} and {\'A}lvaro S{\'a}nchez-Ferro and Walter Maetzler and Luca Marsili and Lucia Zavala and Lang, \{Anthony E.\} and Pablo Martinez-Martin and Mestre, \{Tiago A.\} and Ralf Reilmann and Hausdorff, \{Jeffrey M.\} and Dorsey, \{E. Ray\} and Paul, \{Serene S.\} and Dexheimer, \{Judith W.\} and Wissel, \{Benjamin D.\} and Fuller, \{Rebecca L.M.\} and Paolo Bonato and Tan, \{Ai Huey\} and Bloem, \{Bastiaan R.\} and Catherine Kopil and Margaret Daeschler and Lauren Bataille and Galit Kleiner and Cedarbaum, \{Jesse M.\} and Jochen Klucken and Aristide Merola and Goetz, \{Christopher G.\} and Stebbins, \{Glenn T.\} and Espay, \{Alberto J.\} and \{on behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee\}",

note = "Funding Information: We thank all MDS members who provided feedback during the public comment phase. Funding Information: 1Gardner Family Center for Parkinson{\textquoteright}s Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA 2HM CINAC, Hospital Universitario HM Puerta del Sur, M{\'o}stoles, Madrid, Spain 3Department of Neurology, University of Kiel, Kiel, Germany 4Hospital General de Agudos Jose Maria Ramos Mejia, Departamento de Neurolog{\'i}a, Universidad de Buenos Aires, Buenos Aires, Argentina 5The Edmond J. Safra Program in Parkinson{\textquoteright}s Disease and the Morton and Gloria Shulman Movement Disorders Clinic, University of Toronto, Toronto, Ontario, Canada 6National Center of Epidemiology and CIBERNED, Carlos III Institute of Health, Madrid, Spain 7Parkinson{\textquoteright}s Disease and Movement Disorders Center, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada 8George Huntington Institute and Dept. of Clinical Radiology, University of Muenster, Muenster, and Dept. of Neurodegenerative Diseases and Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany 9Center for the Study of Movement, Cognition, and Mobility, Tel Aviv Sourasky Medical Center; Department of Physical Therapy, Sackler Faculty of Medicine and Sagol School of Neuroscience, Tel Aviv University, Israel; Rush Alzheimer{\textquoteright}s Disease Center and Department of Orthopaedic Surgery, Rush University Medical Center, Chicago, Illinois, USA 10Department of Neurology and Center for Health + Technology, University of Rochester Medical Center, Rochester, New York, USA 11Discipline of Physiotherapy, Faculty of Health Sciences, University of Sydney, Sydney, Australia 12Department of Biomedical Informatics, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA 13CHDI Foundation/ CHDI Management, Inc., Princeton, New Jersey, USA 14Department of Physical Medicine \& Rehabilitation, Spaulding Rehabilitation Hospital, Harvard Medical School, Charlestown, Massachusetts, USA 15Division of Neurology and the Mah Pooi Soo \& Tan Chin Nam Centre for Parkinson{\textquoteright}s \& Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia 16Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Nijmegen, The Netherlands 17The Michael J. Fox Foundation for Parkinson{\textquoteright}s Research, New York, New York, USA 18Jeff and Diane Ross Movement Disorders Clinic at ATC/Baycrest Health Sciences, Division of Neurology Department of Medicine University of Toronto, Toronto, Ontario, Canada 19Biogen, Cambridge, Massachusetts, USA 20Department of Molecular Neurology, Movement Disorder Unit, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-N{\"u}rnberg, Erlangen, Germany 21Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA",

year = "2019",

month = may,

doi = "10.1002/mds.27673",

language = "English",

volume = "34",

pages = "676--681",

journal = "Movement Disorders",

issn = "0885-3185",

publisher = "John Wiley \& Sons Inc.",

number = "5",

}

Vizcarra, JA, Sánchez-Ferro, Á, Maetzler, W, Marsili, L, Zavala, L, Lang, AE, Martinez-Martin, P, Mestre, TA, Reilmann, R, Hausdorff, JM, Dorsey, ER, Paul, SS, Dexheimer, JW, Wissel, BD, Fuller, RLM, Bonato, P, Tan, AH, Bloem, BR, Kopil, C, Daeschler, M, Bataille, L, Kleiner, G, Cedarbaum, JM, Klucken, J, Merola, A, Goetz, CG, Stebbins, GT, Espay, AJ & on behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee 2019, 'The Parkinson's disease e-diary: Developing a clinical and research tool for the digital age', Movement Disorders, vol. 34, no. 5, pp. 676-681. https://doi.org/10.1002/mds.27673

TY - JOUR

T1 - The Parkinson's disease e-diary

T2 - Developing a clinical and research tool for the digital age

AU - Vizcarra, Joaquin A.

AU - Sánchez-Ferro, Álvaro

AU - Maetzler, Walter

AU - Marsili, Luca

AU - Zavala, Lucia

AU - Lang, Anthony E.

AU - Martinez-Martin, Pablo

AU - Mestre, Tiago A.

AU - Reilmann, Ralf

AU - Hausdorff, Jeffrey M.

AU - Dorsey, E. Ray

AU - Paul, Serene S.

AU - Dexheimer, Judith W.

AU - Wissel, Benjamin D.

AU - Fuller, Rebecca L.M.

AU - Bonato, Paolo

AU - Tan, Ai Huey

AU - Bloem, Bastiaan R.

AU - Kopil, Catherine

AU - Daeschler, Margaret

AU - Bataille, Lauren

AU - Kleiner, Galit

AU - Cedarbaum, Jesse M.

AU - Klucken, Jochen

AU - Merola, Aristide

AU - Goetz, Christopher G.

AU - Stebbins, Glenn T.

AU - Espay, Alberto J.

AU - on behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee

N1 - Funding Information: We thank all MDS members who provided feedback during the public comment phase. Funding Information: 1Gardner Family Center for Parkinson’s Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA 2HM CINAC, Hospital Universitario HM Puerta del Sur, Móstoles, Madrid, Spain 3Department of Neurology, University of Kiel, Kiel, Germany 4Hospital General de Agudos Jose Maria Ramos Mejia, Departamento de Neurología, Universidad de Buenos Aires, Buenos Aires, Argentina 5The Edmond J. Safra Program in Parkinson’s Disease and the Morton and Gloria Shulman Movement Disorders Clinic, University of Toronto, Toronto, Ontario, Canada 6National Center of Epidemiology and CIBERNED, Carlos III Institute of Health, Madrid, Spain 7Parkinson’s Disease and Movement Disorders Center, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada 8George Huntington Institute and Dept. of Clinical Radiology, University of Muenster, Muenster, and Dept. of Neurodegenerative Diseases and Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany 9Center for the Study of Movement, Cognition, and Mobility, Tel Aviv Sourasky Medical Center; Department of Physical Therapy, Sackler Faculty of Medicine and Sagol School of Neuroscience, Tel Aviv University, Israel; Rush Alzheimer’s Disease Center and Department of Orthopaedic Surgery, Rush University Medical Center, Chicago, Illinois, USA 10Department of Neurology and Center for Health + Technology, University of Rochester Medical Center, Rochester, New York, USA 11Discipline of Physiotherapy, Faculty of Health Sciences, University of Sydney, Sydney, Australia 12Department of Biomedical Informatics, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA 13CHDI Foundation/ CHDI Management, Inc., Princeton, New Jersey, USA 14Department of Physical Medicine & Rehabilitation, Spaulding Rehabilitation Hospital, Harvard Medical School, Charlestown, Massachusetts, USA 15Division of Neurology and the Mah Pooi Soo & Tan Chin Nam Centre for Parkinson’s & Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia 16Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Nijmegen, The Netherlands 17The Michael J. Fox Foundation for Parkinson’s Research, New York, New York, USA 18Jeff and Diane Ross Movement Disorders Clinic at ATC/Baycrest Health Sciences, Division of Neurology Department of Medicine University of Toronto, Toronto, Ontario, Canada 19Biogen, Cambridge, Massachusetts, USA 20Department of Molecular Neurology, Movement Disorder Unit, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany 21Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA

PY - 2019/5

Y1 - 2019/5

UR - https://www.scopus.com/pages/publications/85063315115

U2 - 10.1002/mds.27673

DO - 10.1002/mds.27673

M3 - Comment/debate

C2 - 30901492

AN - SCOPUS:85063315115

SN - 0885-3185

VL - 34

SP - 676

EP - 681

JO - Movement Disorders

JF - Movement Disorders

IS - 5

ER -

The Parkinson's disease e-diary: Developing a clinical and research tool for the digital age

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