Abstract
Body Rationale: Patient and Public Involvement (PPI), or ‘Stakeholder engagement’ to include a wider range of stakeholders such as healthcare professionals or medical students, is a key element of inclusive healthcare communication research and education. Effective healthcare communication depends on successful engagement of healthcare providers as well as service users. Stakeholder engagement involves collaborating with the people whom the research is designed to impact, to 1) gain additional perspectives, 2) ensure research is relevant, meaningful and meets their needs, and 3) assists in the production of information and communication recommendations, education, or tools that are understandable and useful for them.
This symposium will showcase healthcare communication research projects that have engaged a wide variety of stakeholders into the design, operationalization, and/or implementation and dissemination. One project involves stakeholder engagement in medical education development. Speakers will discuss how they practically involved stakeholders, the benefit that their involvement provided, lessons learned, and any challenges that they encountered.
Speakers with qualification: The chairs will introduce the topic, moderate the session, and lead a fruitful discussion on the value and the challenges of stakeholder engagement in HC research and education; they have ample experience with PPI and engaging other stakeholders in research and education, in various domains. Speaker 1 will present her work on communication tool development for people with cognitive complaints in the memory clinic setting using co-research and co-design. Within her PhD-project, she conducts multiple studies in which she involves various stakeholders on multiple levels. Speaker 2 is involved in a national consortium aimed at testing and improving dementia prevention initiatives in the public health domain. She will present her qualitative research in which she aimed to explore communication preferences, needs and perspectives of citizens at risk of developing dementia, with varying levels of health literacy, regarding dementia risk, risk factors and prevention potential. Speaker 3 will share her experience of involving various stakeholders including patients, healthcare professionals at both primary dental care and tertiary specialist care, as well as oral cancer campaigner in the development of a grant proposal for a communication tool to improve oral cancer talk at the routine dental appointment. Speaker 4 has expertise in engaging patient partners and facilitating their involvement in curriculum development within medical education. Speaker 5 will share her experience alongside Speaker 1 regarding the development medical student communication skills training based on the feedback from patient partners. Speaker 5 was trained by the European Patients’ Academy (EUPATI) and is part of a team helping her institution implement more significant PPI infrastructure.
Timetable
All research/project presentations will take appr. 10 minutes with an additional 3 minutes Q&A.
0 – 15: Introduction (15 minutes): what is PPI / Stakeholder engagement and why is it important for healthcare communication research (by Silvia Poli and Leonie Visser)
16-28: Presentation 1 including Q&A: Co-design of a tool to support people with cognitive complaints in their communication with memory clinic professionals (Tanja de Rijke)
29-41: Presentation 2 including Q&A: Communication about dementia risk and prevention in the public health domain: preferences and needs of citizens with varying levels of health literacy (Esmee Kreuk)
42-54: Presentation 3 including Q&A: Involving PPI members in the development of a communication tool to improve discussing oral cancer screening during routine dental checkup (Siyang Yuan)
55-67: Presentation 4 including Q&A: Patient-partner involvement in gaining insight into the implementation of Empathy Maps in medical education (Evelyn Watson and India Pinker)
68-87: General discussion (20 minutes) among speakers and with the audience (chaired by Siyang Yuan and Amber Bennett-Weston)
88-90: Wrap up (Leonie Visser)
This symposium will showcase healthcare communication research projects that have engaged a wide variety of stakeholders into the design, operationalization, and/or implementation and dissemination. One project involves stakeholder engagement in medical education development. Speakers will discuss how they practically involved stakeholders, the benefit that their involvement provided, lessons learned, and any challenges that they encountered.
Speakers with qualification: The chairs will introduce the topic, moderate the session, and lead a fruitful discussion on the value and the challenges of stakeholder engagement in HC research and education; they have ample experience with PPI and engaging other stakeholders in research and education, in various domains. Speaker 1 will present her work on communication tool development for people with cognitive complaints in the memory clinic setting using co-research and co-design. Within her PhD-project, she conducts multiple studies in which she involves various stakeholders on multiple levels. Speaker 2 is involved in a national consortium aimed at testing and improving dementia prevention initiatives in the public health domain. She will present her qualitative research in which she aimed to explore communication preferences, needs and perspectives of citizens at risk of developing dementia, with varying levels of health literacy, regarding dementia risk, risk factors and prevention potential. Speaker 3 will share her experience of involving various stakeholders including patients, healthcare professionals at both primary dental care and tertiary specialist care, as well as oral cancer campaigner in the development of a grant proposal for a communication tool to improve oral cancer talk at the routine dental appointment. Speaker 4 has expertise in engaging patient partners and facilitating their involvement in curriculum development within medical education. Speaker 5 will share her experience alongside Speaker 1 regarding the development medical student communication skills training based on the feedback from patient partners. Speaker 5 was trained by the European Patients’ Academy (EUPATI) and is part of a team helping her institution implement more significant PPI infrastructure.
Timetable
All research/project presentations will take appr. 10 minutes with an additional 3 minutes Q&A.
0 – 15: Introduction (15 minutes): what is PPI / Stakeholder engagement and why is it important for healthcare communication research (by Silvia Poli and Leonie Visser)
16-28: Presentation 1 including Q&A: Co-design of a tool to support people with cognitive complaints in their communication with memory clinic professionals (Tanja de Rijke)
29-41: Presentation 2 including Q&A: Communication about dementia risk and prevention in the public health domain: preferences and needs of citizens with varying levels of health literacy (Esmee Kreuk)
42-54: Presentation 3 including Q&A: Involving PPI members in the development of a communication tool to improve discussing oral cancer screening during routine dental checkup (Siyang Yuan)
55-67: Presentation 4 including Q&A: Patient-partner involvement in gaining insight into the implementation of Empathy Maps in medical education (Evelyn Watson and India Pinker)
68-87: General discussion (20 minutes) among speakers and with the audience (chaired by Siyang Yuan and Amber Bennett-Weston)
88-90: Wrap up (Leonie Visser)
| Original language | English |
|---|---|
| Article number | 109129 |
| Number of pages | 1 |
| Journal | Patient Education and Counseling |
| Volume | 137 |
| DOIs | |
| Publication status | Published - Aug 2025 |