TY - JOUR
T1 - Survivorship care plan (SCP)
T2 - The viewpoints of women with breast cancer and their general practitioners
AU - Ladaique, A. F.
AU - Desandes, E.
AU - Salleron, J.
AU - Di Patrizio, P.
AU - Marchal, F.
AU - Vogin, G.
AU - Lesur, A.
N1 - Funding Information:
Les auteurs remercient Mme M. Chesnel, gestionnaire des donn?es hospitali?res pour son aide lors de la constitution des questionnaires, ainsi que le secr?tariat du Parcours Sein pour leur implication au quotidien. Que l'ensemble des patientes et des m?decins g?n?ralistes ayant permis la r?alisation cette ?tude soit remerci?.
Publisher Copyright:
© 2021 Elsevier Masson SAS
PY - 2021/10
Y1 - 2021/10
N2 - Background: The French National Cancer Institute recommends the use of survivorship care plans (SCP) for all cancer survivors. Developing useful SCP's requires understanding of what survivors and their providers need and how SCP's can be implemented in practice. We conducted a study to assess the delivery of SCP comprehensive binders for breast cancer women (BCW) and their general practitioners (GP) in a Cancer center from January 2019. Methods: SCP binders, containing a full range of information on topics related to post-cancer care to survivor-specific information and referrals, were given to BCW during a post-treatment dedicated consultation. Then a letter, containing the treatment summary and 5-year follow-up schedule, was sent to their GPs. Comprehensive binder delivery assessment was carried out using item checkbox, and anonymous open-answered, self-reported questionnaires were sent by email to BCW and their GPs. Results: The questionnaire response rates were 81.3% for BCW (n = 109/134) and 48.6% for their GPs (n = 52/107). Most BCW (85%) reported that SCP binders provided useful and comprehensive information. However, some of them (18%) felt abandoned and anonymous during the post-treatment follow-up. Most GPs found SCP letters from our anti-cancer center physicians to be useful for their patients, 38% of them had used this information to assure transition of care with other care providers. In addition, GPs were unanimous to express their feeling that this SCP could improve the long-term surveillance of BCW. There was a high concordance between BCW survivors’ and PCP’ answers, especially regarding SCPs as a communication bridge between GPs and BCW survivors. Response results concerning use of the binders: to talk about them: 59% for BCW vs. 51% for GPs, and to show them: 35% for BCW vs. 31% for GPs. Conclusion: The opinions of BCW survivors’ and PCP’ opinions about the use of SCP's by our Cancer Center seems to be favourable. It is essential to implement and develop SCP's as a key tool in long-term surveillance and support for cancer patient survivors and they are a useful instrument for care providers in communication and transition.
AB - Background: The French National Cancer Institute recommends the use of survivorship care plans (SCP) for all cancer survivors. Developing useful SCP's requires understanding of what survivors and their providers need and how SCP's can be implemented in practice. We conducted a study to assess the delivery of SCP comprehensive binders for breast cancer women (BCW) and their general practitioners (GP) in a Cancer center from January 2019. Methods: SCP binders, containing a full range of information on topics related to post-cancer care to survivor-specific information and referrals, were given to BCW during a post-treatment dedicated consultation. Then a letter, containing the treatment summary and 5-year follow-up schedule, was sent to their GPs. Comprehensive binder delivery assessment was carried out using item checkbox, and anonymous open-answered, self-reported questionnaires were sent by email to BCW and their GPs. Results: The questionnaire response rates were 81.3% for BCW (n = 109/134) and 48.6% for their GPs (n = 52/107). Most BCW (85%) reported that SCP binders provided useful and comprehensive information. However, some of them (18%) felt abandoned and anonymous during the post-treatment follow-up. Most GPs found SCP letters from our anti-cancer center physicians to be useful for their patients, 38% of them had used this information to assure transition of care with other care providers. In addition, GPs were unanimous to express their feeling that this SCP could improve the long-term surveillance of BCW. There was a high concordance between BCW survivors’ and PCP’ answers, especially regarding SCPs as a communication bridge between GPs and BCW survivors. Response results concerning use of the binders: to talk about them: 59% for BCW vs. 51% for GPs, and to show them: 35% for BCW vs. 31% for GPs. Conclusion: The opinions of BCW survivors’ and PCP’ opinions about the use of SCP's by our Cancer Center seems to be favourable. It is essential to implement and develop SCP's as a key tool in long-term surveillance and support for cancer patient survivors and they are a useful instrument for care providers in communication and transition.
KW - Breast cancer
KW - General practitioner
KW - Pathway
KW - Survivorship care plan
UR - http://www.scopus.com/inward/record.url?scp=85111569426&partnerID=8YFLogxK
UR - https://pubmed.ncbi.nlm.nih.gov/34344564/
U2 - 10.1016/j.respe.2021.07.001
DO - 10.1016/j.respe.2021.07.001
M3 - Article
C2 - 34344564
AN - SCOPUS:85111569426
SN - 0398-7620
VL - 69
SP - 277
EP - 285
JO - Revue d'Epidemiologie et de Sante Publique
JF - Revue d'Epidemiologie et de Sante Publique
IS - 5
ER -