Nutzer und Nutzerinnen regionaler Demenznetzwerke in Deutschland: Erste Ergebnisse der Evaluationsstudie DemNet-D

Translated title of the contribution: Users of regional dementia care networks in Germany: First results of the evaluation study DemNet-D

Karin Wolf-Ostermann*, Saskia Meyer, Annika Schmidt, Anna Schritz, Bernhard Holle, Markus Wübbeler, Susanne Schäfer-Walkmann, Johannes Gräske

*Corresponding author for this work

Research output: Contribution to journalArticleResearchpeer-review

13 Citations (Scopus)

Abstract

Background: In Germany a growing number of community-based support services for people with dementia (PwD) and their caregivers are organized in dementia care networks (DCN), which provide a single point of entry to social facilities and offer personal care and support. Objective: The aim of this study was to describe the health, functional and social characteristics of PwDs enrolled in DCNs throughout Germany because no data are currently available on this aspect. Material and methods: As part of the multi-center, multi-professional 12-month follow-up study DemNet-D, data on functional and psychological health, sociodemographic and dementia-specific factors and social inclusion were collected in standardized interviews with PwDs living at home. Results: A total of 560 PwDs with an average age of 80 years were enrolled in the study. Of the participants approximately 50 % had Alzheimer’s dementia and more than 75 % demonstrated at least a challenging form of behavior. More than half of the participants lived together with a partner or relative. Instrumental activities of daily living (IADLs) were very limited; nevertheless, one in five PwDs showed no long-term care-dependency level. The participants reported having a relatively low feeling of loneliness and a high feeling of social inclusion, depending on the severity of dementia. Conclusion: This is one of the very first studies generating data on PwDs who receive domiciliary care within DCNs in Germany. The results suggest that the regional DCNs make a successful contribution to overcoming the interface problem and can, therefore, contribute to a more stable care situation and better social integration of PwDs.

Translated title of the contributionUsers of regional dementia care networks in Germany: First results of the evaluation study DemNet-D
Original languageGerman
Pages (from-to)21-27
Number of pages7
JournalZeitschrift fur Gerontologie und Geriatrie
Volume50
Issue number1
DOIs
Publication statusPublished - 1 Jan 2017
Externally publishedYes

Keywords

  • Acceptance
  • Health care research
  • Loneliness
  • Social inclusion
  • Social participation

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