@article{3f1f6e6986dd4dcebe0bb94e2c032b16,
title = "Impact of COVID-19 Pandemic on (Health) Care Situation of People with Parkinson{\textquoteright}s Disease in Germany (Care4PD)",
abstract = "The Care4PD study examined the impact of the COVID-19 pandemic on the care situation of people (PwP) with Parkinson{\textquoteright}s disease in Germany. A comprehensive, nationwide, anonymous questionnaire for PwP was distributed by the members{\textquoteright} journal of the German Parkinson{\textquoteright}s Disease Association and in several PD specialized in-and outpatient institutions. PwP subjectively evaluated their general care situation and individual impairments during the pandemic. We analyzed 1269 el-igible out of 1437 returned questionnaires (88.3%) and compared PwP with (p-LTC) and without (np-LTC) professional long-term care. Both groups rated the general pandemic-related consequences as being rather mild to moderate (e.g., worsening of symptom or concerns). However, familial/social contact restrictions were indicated as most compromising, whereas access to outpatient professional health care providers was less affected. PwP with professional LTC reported more impairment than those without. COVID-19 vaccination rates and acceptance were generally high (p-LTC: 64.3%, np-LTC: 52.3%) at the time of the study, but realization of sanitary measures—especially wearing masks as a patient during care sessions—still needs to be improved. Technical options for telemedicine were principally available but only rarely used. Altogether, during the COVID-19 pandemic, PwP in Germany seemed to have a relatively stable health care access, at least in outpatient settings, while mainly social isolation compromised them. The p-LTC group was more impaired in everyday live compared with the np-LTC group.",
keywords = "Care, Care4PD, Corona, COVID-19, Germany, Impact, Impairments, Parkinson{\textquoteright}s disease, Telemedicine, Vaccination",
author = "Odette Fr{\"u}ndt and Hanff, {Anne Marie} and Tobias Mai and Christiane Kirchner and {des Mazery}, {Emma Bouzanne} and Ali Amouzandeh and Carsten Buhmann and Rejko Kr{\"u}ger and Martin S{\"u}dmeyer",
note = "Funding Information: Funding: This research was funded by the Prof. Dr. Klaus Thiemann Stiftung (no grant number available) and received grants from the Luxembourg National Research Fund (FNR) within the National Centre of Excellence in Research on Parkinson{\textquoteright}s disease [NCERPD(FNR/NCER13/BM/11264123)]. Funding Information: Conflicts of Interest: R.K. received research grants from Fonds National de Recherche de Luxembourg (FNR) as Coordinator of the National Centre for Excellence in Research on Parkinson{\textquoteright}s disease (NCER-PD) and within the PEARL Excellence Programme (FNR/P13/6682797/Kr{\"u}ger), the Michael J. Fox Foundation (ID: 1480), and the European Union{\textquoteright}s Horizon 2020 research and innovation program (Orchestra; Grant Agreement N◦101016167). This research was funded by the Prof. Dr. Klaus Thiemann Stiftung (no grant number available). The other authors declare no conflicts of interest. The funders had no role in the design of the study; in the collection, analyses, or interpretation of data; in the writing of the manuscript; or in the decision to publish the results. Funding Information: This research was funded by the Prof. Dr. Klaus Thiemann Stiftung (no grant number avail-able) and received grants from the Luxembourg National Research Fund (FNR) within the National Centre of Excellence in Research on Parkinson?s disease [NCERPD(FNR/NCER13/BM/11264123)]. Publisher Copyright: {\textcopyright} 2021 by the authors. Licensee MDPI, Basel, Switzerland.",
year = "2022",
month = jan,
doi = "10.3390/brainsci12010062",
language = "English",
volume = "12",
journal = "Brain Sciences",
issn = "2076-3425",
publisher = "Multidisciplinary Digital Publishing Institute (MDPI)",
number = "1",
}