TY - JOUR
T1 - Evaluating Perinatal Health in Europe
T2 - A Comparison of Routine Population Birth Data Sources
AU - Philibert, Marianne
AU - Gissler, Mika
AU - Zurriaga, Oscar
AU - Donati, Serena
AU - Drausnik, Zeljka
AU - Heller, Günther
AU - Macfarlane, Alison
AU - Mohangoo, Ashna
AU - Sakkeus, Luule
AU - Tica, Vlad
AU - Velebil, Petr
AU - Klimont, Jeannette
AU - Broeders, Lisa
AU - Rihs, Tonia A.
AU - Zeitlin, Jennifer
AU - Farr, Alex
AU - Alexander, Sophie
AU - Zhang, Wei Hong
AU - Kolarova, Rumyana
AU - Draušnik, Željka
AU - Kyprianou, Theopisti
AU - Scoutellas, Vasos
AU - Velebil, Petr
AU - Mortensen, Laust Hvas
AU - Sakkeus, Luule
AU - Abuladze, Liili
AU - Gissler, Mika
AU - Blondel, Béatrice
AU - Chantry, Anne
AU - Deneux-Tharaux, Catherine
AU - Durox, Mélanie
AU - Hocquette, Alice
AU - Philibert, Marianne
AU - Zeitlin, Jennifer
AU - Heller, Guenther
AU - Antsaklis, Aris
AU - Sziller, István
AU - Gunnarsdóttir, Johanna
AU - Kearns, Karen
AU - Cuttini, Marina
AU - Misins, Janis
AU - Zile, Irisa
AU - Isakova, Jelena
AU - Lecomte, Aline
AU - Billy, Audrey
AU - Pastore, Jessica
AU - Gatt, Miriam
AU - Nijhuis, Jan
AU - Klungsoyr, Kari
AU - Szamotulska, Katarzyna
AU - the Euro-Peristat Research Group
N1 - Funding: This research was financially supported by the European Union's Horizon 2020 research and innovation program under the grant agreement No. 101018317 (Population Health Information Research Infrastructure [PHIRI]). French participation in the data collection exercise was supported by a grant from the French National Research Agency (grant No. ANR-21-C016-004-01).
Publisher Copyright:
© 2025 The Author(s). Paediatric and Perinatal Epidemiology published by John Wiley & Sons Ltd.
PY - 2025/3/11
Y1 - 2025/3/11
N2 - Background: International comparisons of population birth data provide essential benchmarks for evaluating perinatal health policies. Objectives: This study aimed to describe routine national data sources in Europe by their ability to provide core perinatal health indicators. Methods: The Euro-Peristat Network collected routine national data on a recommended set of core indicators from 2015 to 2021 using a federated protocol based on a common data model with 16 data items. Data providers completed an online questionnaire to describe the sources used in each country. We classified countries by the number of data items they provided (all 16, 15–14, < 14). Results: A total of 29 out of the 31 countries that provided data responded to the survey. Routine data sources included birth certificates (15 countries), electronic medical records (EMR) from delivery hospitalisations (16 countries), direct entry by health providers (9 countries), EMR from other care providers (7 countries) and Hospital Discharge Summaries (7 countries). Completeness of population coverage was at least 98%, with 17 countries reporting 100%. These databases most often included mothers giving birth in the national territory, regardless of nationality or place of residence (24 countries), whereas others register births to residents only. In 20 countries, routine sources were linked, including linkage between birth and death certificates (16 countries). Countries providing all 16 items (N = 8) were more likely to use EMRs from delivery hospitalisations (100%) compared to 50% and 11% in countries with 15–14 items (N = 12) and < 14 items (N = 9), respectively. Linkage was also more common in these countries (100%) versus 75% and 56%, respectively. Other data source characteristics did not differ by the ability to provide data on core perinatal indicators. Conclusions: There are wide differences between countries in the data sources used to construct perinatal health indicators in Europe. Countries using EMR linking to other sources had the best data availability.
AB - Background: International comparisons of population birth data provide essential benchmarks for evaluating perinatal health policies. Objectives: This study aimed to describe routine national data sources in Europe by their ability to provide core perinatal health indicators. Methods: The Euro-Peristat Network collected routine national data on a recommended set of core indicators from 2015 to 2021 using a federated protocol based on a common data model with 16 data items. Data providers completed an online questionnaire to describe the sources used in each country. We classified countries by the number of data items they provided (all 16, 15–14, < 14). Results: A total of 29 out of the 31 countries that provided data responded to the survey. Routine data sources included birth certificates (15 countries), electronic medical records (EMR) from delivery hospitalisations (16 countries), direct entry by health providers (9 countries), EMR from other care providers (7 countries) and Hospital Discharge Summaries (7 countries). Completeness of population coverage was at least 98%, with 17 countries reporting 100%. These databases most often included mothers giving birth in the national territory, regardless of nationality or place of residence (24 countries), whereas others register births to residents only. In 20 countries, routine sources were linked, including linkage between birth and death certificates (16 countries). Countries providing all 16 items (N = 8) were more likely to use EMRs from delivery hospitalisations (100%) compared to 50% and 11% in countries with 15–14 items (N = 12) and < 14 items (N = 9), respectively. Linkage was also more common in these countries (100%) versus 75% and 56%, respectively. Other data source characteristics did not differ by the ability to provide data on core perinatal indicators. Conclusions: There are wide differences between countries in the data sources used to construct perinatal health indicators in Europe. Countries using EMR linking to other sources had the best data availability.
KW - birth data
KW - Europe
KW - international comparisons
KW - perinatal indicators
KW - pregnancy
UR - http://www.scopus.com/inward/record.url?scp=105000827472&partnerID=8YFLogxK
UR - https://pubmed.ncbi.nlm.nih.gov/40070031/
U2 - 10.1111/ppe.13178
DO - 10.1111/ppe.13178
M3 - Article
C2 - 40070031
AN - SCOPUS:105000827472
SN - 0269-5022
JO - Paediatric and Perinatal Epidemiology
JF - Paediatric and Perinatal Epidemiology
ER -